Since I just came up with the pennies idea to track Lilly’s survival, I decided to go retro — retroactive, that is. I went to the bank and got rolls and rolls of pennies so that I had 1 penny for every day since Lilly received that fateful rabies vaccine on January 23, 2012, that royally screwed up her brain and spinal cord. Today marks Day 394 of Lilly’s survival. Howz that for positive thinking?
Since Lilly’s ongoing weird / scary bladder infection was diagnosed a few weeks ago, we’ve added a number of experts to Team Lilly. While focusing on improving her quality of life, we’re still wrestling with medical decisions that will likely dictate the length of that life. Simply put, Lilly remains tenuously perched on a narrow ledge of “remission” from the deadly consequences of brain and spinal cord inflammation. She is NOWHERE near normal neurologically, but she is holding steady … for now.
I remain befuddled by the reality that Lilly may still die from this vaccine-induced brain and spinal cord inflammation. That, I think, reflects my overall sense of optimism in life. Early on, it never truly dawned on me that she would NOT survive. And, yet, I know I easily get bogged down by worry and not-so-positive thinking. While massaging Lilly’s back for more than an hour Sunday night, I realized that I constantly walk a tightrope between gratitude that she still lives at my side and (preemptive) grief over what her loss would mean to me.
It has been a ridiculous week in Lilly Town. Here is a quick recap of our efforts to help Lilly recover from a terrible bladder infection. It stems from her symptoms and treatment for rabies vaccine-induced brain and spinal cord inflammation. We are now 13 months into this saga.
From sheer exhaustion and worry, I’m a weepy mess right now. I probably shouldn’t even try to write, but I know many of you are worried about Lilly. She is OK. Not great, but OK. Here is the latest news.
We’ve been busy with “hospitalized at home” protocols for Lilly since she came home Friday evening. Much to do, much to worry about, but here is a quick update from Sunday morning (1-27-13).
Friday morning (1/25/13) around 6:45 am, Lilly had her first seizure in about a year. Then, we found an absurd amount of blood in her urine, and our veterinary team found AIR inside the walls of Lilly’s bladder. That’s. NOT. Good. Potentially life-threatening, even.
If you’d asked me in January 2012 when Lilly first suffered an adverse rabies vaccine reaction if she would survive, I would have said, “Probably.” If you’d asked me the same question in August 2012, when Lilly’s brain inflammation returned so severely, I would have said, “Probably not.” Now? The answer is that I simply don’t know, but I am hopeful.
After Lilly’s massive vaccine-induced brain inflammation relapse in August 2012, we began again to rebuild her strength and her life. This time, we added a chemo drug called cytarabine … in addition to all the other immune-suppressant and seizure drugs. Lilly gets 4 injections over 2 days every three weeks. She will have her 8th…
Over three days in early August 2012, Lilly went from a good, steady recovery to near death. Tired one day. Wobbly the next. Bordering on coma the next. Her adverse rabies vaccine reaction (massive brain inflammation) had returned with a vengeance. It had been 6 weeks since our 4th attempt to wean Lilly’s steroids. She…
