While we use cytarabine — a chemo drug with good anti-inflammatory properties for our needs — at lower doses than would be required for cancer treatment, Lilly still suffers from a dry mouth after her injections every 3 weeks. Her nose is also CRAZY dry (more from the steroids than the chemo), but not nearly as bad as in February, when she developed massive nosebleeds. Here is a recap of our solutions.
You have our apologies for the lack of blog posts this week. Just too-too-too much going on with Lilly, with work, with my mom (who is terminally ill). Here is a little VIDEO recap of Lilly’s recovery so far.
I am humbled and honored by your continued devotion to our troubled journey. Thanks to YOU and your chip-in help, we’ve been able to pay our bills this month. In a way, we’re starting with a cleaner slate. Not much money, but not much debt.
Taking care of Lilly now that the vaccine-induced meningoencephalomyelitis has reared its ugly head again means noticing what she can and cannot do. Here are a few examples you might find interesting.
I’ve been told in the past perhaps I pay too much attention to the little details of Lilly’s presumed recovery from vaccine-induced meningoencephalomyelitis (inflammation of the brain, lining of the brain, and spinal cord). However, since we are together pretty much 24/7, it’s hard not to notice subtle differences. Here are some thoughts on how this recovery compares to her first recovery, right after the vaccine was given in late January 2012.
A few weeks ago on Twitter, someone responded to one of our posts about Lilly’s vaccine-induced meningoencephalomyelitis by saying essentially this, “It’s the price we pay for having a low incidence of rabies in the U.S.” Oh, I get the realities and perils of population medicine. Yet, the comment got me thinking about money, suffering, and a potential higher purpose.
