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Sometimes we have to laugh at the predicaments spawned by Lilly’s ongoing neurological problems — otherwise, we’ll cry. Here are a few examples of the funny and the not so funny moments in our lives.
Those of you who’ve been following our saga — both before Lilly suffered vaccine-induced brain inflammation and after — may have noticed (or not) that you have NOT seen a whole lot of BLAME going around here on Champion of My Heart.
I suffer certain doubts about how Lilly’s vaccine-induced illness is going and how it might end. I experience real dread at key points in the hills and valleys of our journey — as it stretches now into its second year. At times, I fear that I’m making bad decisions about Lilly’s ongoing treatment. I still cry … a lot. Perhaps that goes without saying. Continue reading
We’re back. After 12 glorious days “off,” Lilly and I find ourselves nearly ready to begin a new year. We spent 7 of those 12 days home all day in a binge of Silly Lilly Whatever Days. We slept. We walked. We hung out. We were grateful. We’ve seen a few blips since our last regular reports, but all in all … Lilly is steady and doing well 21 weeks since her massive vaccine-induced brain inflammation relapse.
In a year when many times it looked like Lilly might not survive to celebrate, I officially declare the start to the HOLIDAY at our house. 12 glorious days of togetherness begins in 3 … 2 … 1
P.S. This photo was taken last year, about a month before Lilly suffered a rare / severe adverse rabies vaccine reaction.
I’m too tired after a month sprinting to finish work so that I could enjoy the holiday, but Lilly is mostly OK. She has been more tired than normal these last 10 days or so, and she has been a little wobbly the last couple of days, but she had chemo injections again last weekend. Typically, we start seeing a real boost from that any minute now.
We hope to resume a more normal blog post schedule in the new year, but for now … we’re just a couple of grateful girls on a mountain in Colorado.
You have our eternal thanks for your love and support this MOST DIFFICULT year.
Roxanne and Lilly Hawn