Another (Unwelcome) First – Accidental Chemo Overdose

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis, Dog Rant, Dog Whine, Hot News, Newsworthy | Posted on 14-06-2013

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Honestly. Every time I think Lilly’s medical saga cannot get any worse, something else that’s unexpected / unwelcome happens. On top of the not-good kidney news from earlier this week, on top of figuring out Lilly still has high blood pressure (even though she has been on BP meds since February 2012) … Lilly received an accidental “overdose” of cytarabine (a chemo drug) Wednesday night.

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Canine Kidney Trouble – Not Good, Not Dire

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis | Posted on 12-06-2013

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Now that it seems Lilly has been free from bladder bacteria for a few weeks, after nearly 6 straight months of back-to-back bladder infections, we turned our attention to the levels of protein in her urine. Infections can produce high urine protein levels, so we checked again, 2 weeks after Lilly’s last clear urine culture — where her protein level as a 2 (zero is normal). And … it wasn’t good news.

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500 Days and Counting – Adverse Rabies Vaccine Reaction

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis, Dog Life, Dog Training, Dog Training Video, Dog Video, Dog Video Gallery | Posted on 04-06-2013

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Friday, June 7, 2013, marks 500 days since Lilly received the ill-fated rabies vaccine that has forever changed all of our lives. Her widespread brain and spinal cord inflammation remains and requires numerous daily medications and others (including a chemo drug ~ 4 injections, over 2 days, every 3 weeks) to keep her alive. June also marks a full year since Lilly became completely incontinent (both ways). Taking care of her (and working a lot to pay her veterinary bills) consumes my every day. This is our new norm, and that’s OK … until I look at old videos and remember how strong she used to be. Then I’m super sad.

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Bumping Along and Awaiting News

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis | Posted on 29-05-2013

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No real changes in Lilly’s overall condition to report, but here are just a few news items.

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Video Update on Lilly’s Brain Inflammation

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis, Dog Life, Dog Photo, Dog Trick Video, Dog Video, Dog Video Gallery | Posted on 17-05-2013

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I don’t much remember what life with Lilly was like before she got so sick with an adverse rabies vaccine reaction called meningoencephalomyelitis in January 2012. Taking care of her fills my days. Our world has gotten quite small, but we feel joy at even the tiniest “normal” thing — such as playing fetch. Here, friends, is a little video update.

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Feeling Brave-ish 16 Months into Our Canine Brain Saga

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis, Dog Life, Dog Photo | Posted on 10-05-2013

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It’s official. I’ve fallen out of the habit of blogging. It’s complicated. Today, for example, my plans to finish work early so that I could clean my house (which is getting scary) got slaughtered by imminent, unexpected work demands from 3 different clients. Since it looks like I’ll be cleaning all evening, I’m trying to make some space in my brain to write a real update about Lilly. Let’s see how it goes.

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Quick Update on Lilly

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis | Posted on 12-04-2013

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Not nearly enough chocolate or ice cream in the house for a week like this, but here is a short recap of this week’s (mostly good) news … after Lilly became increasingly wobbly and weak, starting last Sunday.

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Into the Unknown We Go

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis | Posted on 09-04-2013

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We got mostly good news today from Lilly’s blood and basic urine tests. The urine culture takes several more days, but Lilly’s complete blood count (CBC) and senior dog blood chemistry panel look good. So, there is no reason we cannot go ahead with her cytarabine injections (“chemo”) tomorrow and Thursday. As for the sudden wobbly-weakness? Into the unknown we go …

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Reeling from Another Setback

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis | Posted on 08-04-2013

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<insert string of vociferous profanities here> Lilly is having another set-back. Whether the weakness and wobbling we’re seeing is a result of the antibiotic-resistant infection in her bladder and monster antibiotic picked to fight it (cloramphenicol)… or the resurgence of her ongoing brain and spinal cord inflammation … we don’t yet know. Here is how it unfolded (mostly in pictures).

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Canine Bladder Wars and Antibiotic-Resistant Bacterial Infections

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis | Posted on 02-04-2013

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The good news? A total of 7 weeks of antibiotics (2 different kinds) wiped out Lilly’s e coli bladder infection. The bad news? Now she has an antibiotic-resistant bacterial infection called staph pseudointermedius. People get MRSA infections. Dogs sometimes get MRSP infections, like this one. All of this stems from her treatment for rabies vaccine-induced meningoencephalomyelitis (and the resulting incontinence). The drug chosen for this next canine bladder war is a doozy.

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Fun With Dog Brains, The Latest Lilly News

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis | Posted on 22-03-2013

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Another silly week comes to a close. Lilly received 4 more cytarabine injections Tuesday and Wednesday (that’s cycle #11, if you’re keeping tabs). Somehow, I ended up with 7 client conference calls this week, including 5 full hours on the phone Thursday. Sheesh! Just a little news this week.

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The Agony and Amusement of Canine Brain Issues

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis | Posted on 13-03-2013

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Lilly is doing pretty well, if you don’t count the 2 super-soaker / super-messy diaper days in the last week and the renewed urge to eat paper products. Oh, and we even had to break out the dog toy Jaws of Life today. Honestly! Read the rest of this entry »

Everything OK After Lilly’s Sudden Collapse

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis, Dog Life, Dog Photo | Posted on 08-03-2013

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The headline is that Lilly is fine, but here is a recap of how she gave me a BIG scare on Wednesday.

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Adverse Rabies Vaccine Reaction Update 6 Weeks After Setback

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis | Posted on 05-03-2013

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Whew! We’ve been running around like wild monkeys, with as many as 6 veterinary appointments per week. You have our apologies for not posting about every little shift in Lilly’s health. Here are some highlights from recent weeks, as Lilly continues to recover from a terrible bladder infection (caused by immune-suppressing treatment for her adverse rabies vaccine reaction >> brain and spinal cord inflammation).

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Wordless Wednesday – Retroactive Pennies

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Posted by Roxanne Hawn | Posted in Adverse Vaccine Reaction - Recovery from Meningoencephalomyelitis | Posted on 20-02-2013

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Since I just came up with the pennies idea to track Lilly’s survival, I decided to go retro — retroactive, that is. I went to the bank and got rolls and rolls of pennies so that I had 1 penny for every day since Lilly received that fateful rabies vaccine on January 23, 2012, that royally screwed up her brain and spinal cord. Today marks Day 394 of Lilly’s survival. Howz that for positive thinking?

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